Today is Tuesday 4th May

I haven't written my blog for ages. I have been really well. I am having chemo less often at the moment. It is great.

My news is that:

I had an eye test in the Easter holidays which showed my eye sight has got worse.
Then I had an emergency MRI, but everything is fine. The doctor said my tumour is 'stable'

I had an allergic reaction to one of my chemo drugs so now it takes me 4 hours to have it. Hopefully this will stop it happening again.

I am getting stronger and fatter at the moment with my physio and my feeding tube.

Dawn is our Rainbow Trust worker and she now gives me and mummy lifts to Great Ormond Street. (This is good because it means I don't have to listen to my mother swearing at London traffic)

I am starting school in September and I am really excited.

Big thankyous to:

Great Granny for more lovely hats and cardies
Cath for all the fab dvds
Dawn and Lizzie for yummy easter eggs.
All of you who keep giving blood.


HERE IS A VIDEO OF ME RIDING MY NEW PONY THAT WE MADE AT THE WEEKEND.